Neurologist 12/7/16

Bright spot of the visit: everyone in the office went nuts over Kira, 9 1/2 months old and a big beautiful personality. ❤️

By purely physical-examination standards, I’m still doing well. All the basic neurological tests were fine, as they always are. He did ask me to get another MRI, with contrast, which I intially balked at because of the aforementioned breastfeeding reason, but after explaining that Kira would most certainly not agree to drink 24 hours’ worth of her breastmilk feedings from a bottle, he said that just dumping 1 or 2 feedings afterward would be sufficient. THAT she can do. So, an MRI is on the horizon, likely for early January to fit in with our plans to conceive Baby Glotzbach #2.

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Just say no (to contrast dye) (just this once)

I last saw my neurologist in December of 2015. I was 7 months pregnant and they said that they would like me to have an MRI in March, after I gave birth, just to see how things were going since a relapse is more common in the weeks following childbirth. Since I’m almost always very agreeable with any request a healthcare provider makes of me, I said sure no problem. We’ll call you to set it up, they said. 

March came and went without a call. As did April, and May, and now most of June. My next appointment is on July 12th and the subject of the MRI will likely come up again. 

During December’s discussion, they said that since I was planning on breastfeeding my baby, I would need to “pump and dump” my breastmilk for 24 hours following the MRI due to the contrast dye I’d be injected with. “No problem,” I said. Naïve, pregnant me assumed I’d be able to pump 24 hours’ worth of feedings well in advance and just feed baby-to-be from the bottle until I was in the clear. Baby-to-be would happily drink my lovingly-pumped milk, I’d have my MRI, and life would be roses. 

Ha. Ha-ha-ha-ha. That is the sound of my maniacal laughter at the whimsical notion of Baby-to-be disappearing and the reality of Baby-that-is taking its place. Baby-that-is is a lovely 4-month-old girl named Kira who laughs in the face of a bottle. And sometimes cries. And absolutely refuses to drink from one. Well, I take that back—she’ll occasionally sip from one, maybe even drink an ounce here and there. But 24 hours’ worth? An entire day??

Ha. 

So I’ll politely explain the situation and say “no” to an MRI with contrast until she’s weaned. Sorry-not-sorry.

I’m sure they’ll be thrilled. 

Neurologist visit today

I saw my neurologist again today. Uneventful visit, except my mother was there with me and she got to ask questions.

I’m doing fine. I didn’t get my latest bloodwork done, which didn’t enable me to get an MRI before this doctor visit, but that’s OK. New plan: get bloodwork done ASAP; have MRI in August; go off Rebif in September to try to conceive; see Dr. Rosenberg again in November. Fabulous.

And you know what that means—only 5 more months of Rebif for awhile. (I’m over it…a post coming soon about my recent difficulties with staying compliant.)

Vacation

IMAG0353This is under the pier at Cocoa Beach. I’ve been off of work for a week. The ex-husband and I have done a few fun things (tennis, the beach, rollerblading around Lake Baldwin where the 2013 MS Walk will be) and I’ve also used the time to get some medical stuff out of the way.

I had my 3rd brain and cervical spine MRI this past Monday, and then I saw my neurologist on Wednesday. Thankfully, he had nothing but good news for me: my lesions are stable and there is no change from my last MRI back in June (which was much improved from my diagnostic one in April of 2011). God is truly good, as are the results of my continued positive attitude and exercise.

Diagnosed

My diagnosis was in April of 2011…relapsing/remitting MS.

I knew what it was before they told me for sure. I knew when I first felt the symptoms (numbness first, then weakness); I knew as I lay freezing cold in the MRI machine taking pictures of my brain and spine. And I knew when the neurologist called me on my cell phone less than an hour after I left the radiologist. The MRI is indicative of multiple sclerosis…you will be on SoluMedrol right away… I was getting food at Chipotle. I had to excuse myself from the line to go to the bathroom and cry.

When the symptoms began, I went to CentraCare. Being without a primary doctor, there was nowhere else to go. The numbness was my only symptom at that point, starting at a spot midway on my left abdomen and radiating outward slowly but surely until it covered my entire left side within two days. The doctor told me to go to the E.R. if I developed muscle weakness. I laughed inside myself and disregarded…even a couple of days later, when the muscle weakness indeed started on my lower left leg. It wasn’t an emergency. The emergency would have been had I had to pay for an emergency-room MRI rather than the one my insurance paid for in the radiology clinic.

In the year 2012, I am a blogging novice. I hope I get readers. I hope you all are out there, my fellow neurologically challenged.